Communication & information sharing

Guide for schools

Communication and information sharing are essential to supporting a young person with epilepsy, keeping them safe and including them in all school activities. Those who need to be involved include the young person, their parents, carers and families, school staff, healthcare professionals and other pupils. 

Why does communication and information sharing matter? 

When you have a young person with epilepsy at your school, communication and information sharing are key to ensuring they get the support they need to feel safe and included. The school should discuss information-sharing arrangements with the young person and their parents. 

These arrangements, for example, might include how staff members, volunteers and other pupils might be informed about the young person’s condition. These details should be recorded on the young person's individual healthcare plan. 

Find out about Individual Healthcare Plans

Understand My Epilepsy

Understand how epilepsy effects the young people who live with it in their own words.

Find out more

Find more information for parents & carers

Support at school

Access resources and strategies to support children with epilepsy at school. Learn how to manage their educational needs effectively.

Epilepsy and learning and behaviour

Access resources and strategies for managing learning and behaviour in children with epilepsy. Support your child's development effectively.

Young Epilepsy Guide for Schools

Other sections of the guide that may be of interest

About seizures

Information about seizure types, triggers, first aid, treatments, records, and emergency medication for schools

UK legal frameworks

An overview of the different laws and systems in England, Northern Ireland, Scotland and Wales

Also in this section of the guide

Training & awareness

All staff working with a young person with epilepsy should be trained to ensure they understand the young person’s condition and its impact on their life.

Individual Healthcare Plans

Every young person with epilepsy in school should have an Individual Healthcare Plan (IHP). Find out what an IHP should include and download a template.