Parents and carers

We're here to help

As a parent of a child or young person with epilepsy life can be really hard.  You and your child might be feeling anxious and lonely, and the condition is often misunderstood. You don't know what the right thing to do is. 

But you are not alone.

We can help with information and resources to support your child at home and at school. We can also help connect you with other parents who understand what you are going through and share their experiences with you.  

Discover how we can help below, or explore our Information for parents and carers pages.

 

Youth Support Services

Our Support and inclusion team works with young people and their families to help them through their diagnosis and beyond, to better understand their rights, as well as helping them get access to the right services and support.

Guide for schools

This guide is for people who work in schools or other educational settings. It provides wide-ranging information, guidance and educational strategies for supporting young people with epilepsy to ensure they are safe and included in all aspects of school life.

Visiting our diagnostic centre

Epilepsy diagnostic services for children and young people. Outpatient EEG and video telemetry services for diagnosing epilepsy.

Information for parents and carers

Epilepsy and your developing child

Discover resources and guidance for supporting the development of children with epilepsy. Learn effective strategies and tips for parents and carers.

Your child's education

Access resources and strategies for supporting the education of children with epilepsy. Learn how to effectively manage their learning needs.

Useful templates & tools

Access essential questionnaires and forms for parents and carers, and professionals, who care for children and young people with epilepsy.