Our strategy & performance

We are dedicated to standing with children and young people living with epilepsy.  

By 2030

All children and young people with epilepsy in the UK will be a part of a community that gives them the support they need, when they need it. Their voices will be heard and respected. Healthcare services will meet their physical and mental health needs. They’ll take part fully in all aspects of school life and be able to thrive. Every child and young person with epilepsy in the UK, and their care givers, will know we’re here to help.

Strategy 2025-2030 

Led by young people living with epilepsy, we designed three programmes to deliver our strategy:

Programme one: Me and my family gain confident through information and support

Programnme two: My health and wellbeing needs are met

Programme three: My education opportunities are inclusive

Read our strategy

Our three programmes

Programme one

Me and my family gain confidence through information and support

Programme two

My health and wellbeing needs are met

Programme three

My education opportunities are inclusive

Research and Impact Report 2024

The 2024 Research and Impact Report highlights the significant achievements and milestones of the National Centre for Young People with Epilepsy Charitable Trust. This year has been marked by substantial progress in paediatric epilepsy research, with numerous active projects, new studies, and impactful publications.

Annual Report and Accounts 2024-2025

See how Young Epilepsy supported more young people this year, growing services, influencing schools and improving care through youth voice, research and education.