Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Fiona & Elijah: Autism, Epilepsy, and Hope
Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.
I’ve found purpose through my pain
Emma-Louise turned trauma from epilepsy, bullying and loss into hope—writing a book to support others and raise awareness through Jo’s story.
Lights, Camera, Misconception
Hollywood often misrepresents seizures, fuelling myths about epilepsy. Discover what films get wrong and why accurate portrayal matters.
I want to be the advocate I never had
Having epilepsy since infancy, Emma is now seven years seizure-free and a dedicated advocate for young people who lack community.
Owning Purple Day
Dian explains why Purple Day matters, sharing their experience of epilepsy at school and how speaking up builds awareness, kindness and confidence.
Understanding your learning style when you have epilepsy
Learn how epilepsy can affect learning and how understanding your learning style helps. Sally’s story shows how knowing strengths builds confidence at school.
Growing up early
Jess shares how childhood epilepsy meant growing up too fast, facing anxiety, and finding confidence through support that helps young people feel safe and understood.
Epilepsy changed our lives, now I’m fighting back
When her daughter Neli was diagnosed with epilepsy, Alwen turned hope into action—raising £1,200 through Young Epilepsy’s Walk 100 Miles Challenge. Join her journey