Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Fiona & Elijah: Autism, Epilepsy, and Hope
Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.
Putting young people at the heart of our health information
Our health information provides clear guidance from real experiences, tailored to young people. Find out more how we do health information differently.
Liberty’s Story: Finding hope through surgery
From 30 seizures a day to living life fully – discover Liberty’s remarkable epilepsy journey and the breakthroughs that changed everything.
Feeling in limbo during or after an epilepsy diagnosis?
No child should face epilepsy alone. Help us reach families sooner with vital support and care. Give now—your donation will be matched!
Useful tips for logging seizures
Logging seizures helps spot patterns and improve treatment. Learn practical tips to make tracking easier and take control of your epilepsy today!
New seizure films
Watch new seizure films from young people living with epilepsy, great for professionals to learn how to support epilepsy in clinics, classrooms and care.
The making of: You can help films
Find out how the new seizure films were made with young people at the heart - what they want you to understand about their seizure type and how you can help.
Young Voices Shape NHS Transition Booklets
Young Epilepsy’s Youth Voice Network helped redesign NHS Hull’s epilepsy transition booklets—real impact, real voices, real change.