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Paediatric Epilepsy Research and Impact Report 2025
Young Epilepsy leads world-class childhood epilepsy research, delivering early diagnosis, precision treatments and better support for children and families.
Policies & reports
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Research and Impact Report 2024
The 2024 Research and Impact Report highlights the significant achievements and milestones of the National Centre for Young People with Epilepsy Charitable Trust. This year has been marked by substantial progress in paediatric epilepsy research, with numerous active projects, new studies, and impactful publications.
Research Projects 2021
This document outlines the new, ongoing, and completed projects during July 2020 to June 2021.
The perceived impact of COVID-19 (2020)
An online survey was used to explore the perceived impact of COVID-19 and associated restrictions on young people with epilepsy in the UK
Research Report 2020
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2019
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2018
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Knowledge of and attitudes towards epilepsy among teachers
The objective of this study was to systematically review research that has focused on knowledge of and attitudes towards epilepsy among teachers.
Research Report 2016-17
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
The SEEN Study 2017
The purpose of the SEEN study was to document, on a population basis, the development and behaviour of young children with epilepsy. The study also focused on emotional wellbeing, sleep and fatigue in their parents. A comparison group of children with neurodisability were included; these children did not have epilepsy but had other neurological or neurodevelopmental problems. This comparison allowed us to study whether having a child with epilepsy, specifically, has an impact on parental functioning.
Epilepsy support at school survey 2017
The survey findings from our online survey of young people with epilepsy and their parents and carers to find out whether schools are providing support that complies with Government standards.
Research Report 2015/16
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.