ACT Mental Health Project

A groundbreaking initiative aimed at supporting children and young people living with epilepsy is being trialled in Southwest England.

Thanks you for your tireless support on the #OnTopOfEpilepsy campaign

Last year NHS England released a new bundle of care for children and young people with epilepsy with increasing access to mental health checks and support as one of four key areas for improvement. New commitment to improvements in this area has seen funding for pilots focussed on integrating mental health care within epilepsy services approved across all regions in England.

Having worked with young people living with epilepsy for 15 years, it's clear that many face mental health challenges without adequate support. The ACT project presents an exciting opportunity to enhance access to evidence-based therapy for young individuals diagnosed with epilepsy."
Alex, Youth Support Coordinator at Young Epilepsy

Young people at the heart of everything we do

Our commitment to youth voice saw focus groups being set up with with young people and healthcare professionals around the use of digital mental health screening tools in epilepsy care. This work was carried out on behalf of NHS England and contributed to the use of digital mental health screening in pilot projects across the country looking to integrate mental health checks and support into epilepsy care. Pilots like the ACT project, are only possible thanks to brave young people sharing their experiences.